La niña, de tres años y con orígenes toresanos, está diagnosticada de la Enfermedad de Batten CLN1, una dolencia ultrarrara degenerativa Mara es una niña de tres años con orígenes toresanos. Uno de sus abuelos maternos es de aquí y, a pesar de vivir fuera, aquí tienen una casa a la que vuelven de vez … Continue reading Mara camina acompañada: la niña de Zamora con una enfermedad ultrarrara
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