Es el Día del síndrome de Menkes, enfermedad muy rara e incapacitantes que afecta a uno de cada 300.000 nacidos. Hace diez meses Marco hizo historia, pues se convirtió en el primer niño en el mundo en ser tratado con un medicamento para la enfermedad de Menkes, una enfermedad ultrarrara de origen genético que altera la distribución del cobre … Continue reading Gracias a Marco, hay esperanza para los pacientes de Menkes: «Creo que tenemos mucha base científica para estar ilusionados»
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