En la mesa redonda, bajo el lema “Todos somos “Raros”, todos somos iguales” estarán Cristina Díaz del Cerro, presidenta de la Asociación de Enfermedades Raras de Castilla y León (Aerscyl) y madre de Candela (afectada por el síndrome de microdelección 2q37); Raúl Vara, padre de Hugo (afectado por síndrome de Menkes) y presidente de la Asociación … Continue reading Mesa redonda “Todos somos “Raros”, todos somos iguales” Fuentesauco Zamora (Video)
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